Somerset Community Foundation establishes Elliot's Fund
Somerset Community Foundation (SCF) is pleased to announce the establishment of our latest fund called Elliot’s Touch. The fund was set up in June by Donna and Paul Stevens in memory of their young son Elliot, who tragically died of cardiomyopathy in March 2015. Their aim is to raise awareness of mitochondria disease and cardiomyopathy, and the fund will support organisations that are working on new cures.
On Saturday 15 November 2014, Elliot was taken to Musgrove Park Hospital, in Taunton, with suspected dehydration after having gastroenteritis, but it soon became clear that something more serious was wrong with Elliot. It was after being transferred to Bristol Children’s Hospital that he was diagnosed with dilated cardiomyopathy.
Despite showing signs of recovery after treatment, Elliot’s condition began to deteriorate to the point where his heart required a mechanical pump. Donna and Paul were told their son needed a heart transplant. On New Year’s Day, Elliot was taken to London’s Great Ormond Street Hospital where he was further diagnosed with mitochondrial disease – a rare genetic condition that means the cells do not produce enough energy to work. Although Elliot underwent four successful operations and survived the fifth, he died hours later, on March 3rd after almost four months in intensive care.
Donna Stevens said, “Elliot was our hero, our inspiration; he could always light up a room with his gorgeous smile and big blue eyes. We were so proud of him and his determination to live. We want to do him proud and keep his memory alive.”
The couple were introduced to SCF by the staff at EDF, where Paul Stevens works in West Somerset. SCF Deputy Chief Executive, Mary Hancock, has been working very closely with the Stevens to set up their fund and to provide support for future fundraising activities. Mary said, “Setting up a fund with SCF is a quick and simple alternative to going through the process of establishing a grant-making charity. It also avoids the need to recruit trustees, advertise that funding is available and keep up with annual accounting procedures. Our fund management services are comprehensive and will allow the Stevens Family to focus on the more enjoyable aspects of charity work – fundraising and spreading the word about this special cause!”
If you would like to know more about upcoming fundraising events or would like to donate to Elliot’s Touch, please visit http://www.elliotstouch.org/.
If you would like information about setting a memorial fund with Somerset Community Foundation, please call Mary Hancock on 01749 344 949 or email firstname.lastname@example.org.